Virtual partnering event with Global Genes/RARE-X
27-06-2023
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In the fifth event of our latest Virtual Series, we spoke with Karmen Trzupek, Senior Director of Scientific Programs at Global Genes.
In this partnering event with Global Genes/RARE-X, we heard about the organisations’ rare disease innovation and collaboration priorities and how academia, industry R&D, and biotechs can partner with them and leverage the RARE-X platform.
Format: Presentation followed by live Q&A (~40 minutes)
Timestamps
- 0:00 – Introduction to IN-PART
- 3:57 – Introduction to RARE-X / Global Genes
- 20:56 – Benefit for Researchers
- 21:45 – Case Studies
- 23:33 – Data Challenge
- 25:40 – Live Q&A
- 36:34 – Final Comments
As part of our current Global Challenge seeking novel rare disease research and assets, Global Genes/RARE-X have shared their interests through this webinar and in a one-page PDF summary, with the view to identify new partners in academia and industry for collaboration partnerships.
About the organisation: RARE-X is the research platform and data collection program of Global Genes, a 501(c)(3) non-profit organization dedicated to empowering and supporting next-generation rare disease advocacy. RARE-X is looking to build the largest rare disease federated data-sharing library to support global collaboration.
Run in partnership with:
ASTP are Europe’s premier association of knowledge transfer professionals whose work aims to improve the quality of impact that public research has on the economy and society. Learn more.
PraxisAuril are a world-leading professional association for knowledge exchange practitioners, whose network includes 5000+ KE professionals. Learn more.
Labiotech.eu provide the biotech community with current and relevant information about the life sciences industry. They hope that professionals in the industry will collaborate more effectively so they can develop better products that benefit our society. Learn more.
BIA: The BioIndustry Association (BIA) is the voice of the innovative life sciences and biotech industry, enabling and connecting the UK ecosystem so that businesses can start, grow and deliver world-changing innovation. Learn more. BIA’s Rare Disease Industry Group (RDIG) represents a group of innovative bioscience companies that specialise in treatments for rare and ultra-rare diseases. Learn more.
Healx is a global AI-powered techbio company redesigning drug discovery to develop treatments for rare diseases at scale. Learn more.
Copyrights reserved unless otherwise agreed – IN-PART Publishing Ltd., 2023: ‘Virtual partnering event with Global Genes/RARE-X’
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